Rethinking Seizure Care Blog

Rare Disease Day: The Inseparable Bond Between Research and Hope

Rare Disease Day, a worldwide event, is a day dedicated to raising awareness about the impact rare diseases have on those who suffer from them. On February 28, people in over 80 ...

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Topics: Epilepsy Foundations & Organizations, Epilepsy Research, Rare Epilepsy Disorders

Vitamin B6 and Epilepsy: Can Low Levels Cause Seizures?

Epilepsy is a serious issue that affects millions of people in the United States, including many children. Those who are suffering from epilepsy strive to find methods of treating ...

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Topics: Rare Epilepsy Disorders, Seizure Management

Understanding West Syndrome or Infantile Spasms

West syndrome or infantile spasms (IS) is a type of epilepsy that will present itself in the first year of life for 90% of those who suffer from it. The seizures often begin ...

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Topics: In-Home Video EEG, Diagnosing Epilepsy, Rare Epilepsy Disorders, Epilepsy in Infants & Children, Types of seizures

Epilepsy Research and The Rare Epilepsy Network

For many people who are living with epilepsy, there are many options for treatment and symptom management. If you are living with a certain form of epilepsy however, this may not ...

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Topics: Rare Epilepsy Disorders

Rare Epilepsies: Lennox-Gastaut Syndrome

Named after Dr. William Lennox and Dr. Henri Gastaut, Lennox-Gastaut Syndrome (LGS) is a severe form of epilepsy that typically develops during early childhood. LGS is usually ...

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Topics: Rare Epilepsy Disorders

Batten Disease: A Rare Form of Epilepsy

Named after British pediatrician, Frederick Batten, who first described it in 1903, Batten disease is a rare, genetically inherited nervous system disorder. It is the most common ...

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Topics: Rare Epilepsy Disorders

Doose Syndrome: An Overview

Doose syndrome, or Myoclonic-Astatic Epilepsy (MAE), is a type of epilepsy syndrome that first came into the light in the latter part of the 1960s thanks to the efforts of Henry ...

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Topics: Rare Epilepsy Disorders, Epilepsy in Infants & Children

Rett Syndrome Research Trust Announces $9 Million in Research Awards

Rett Syndrome is a brain disorder that affects only females and is typically diagnosed before the child turns two years old. This disorder is incredibly rare and, currently there ...

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Topics: Epilepsy, Epilepsy Research, Epilepsy Fundraising & Donations, Rare Epilepsy Disorders, Epilepsy in Infants & Children

What Is PCDH19 Epilepsy?

PCDH19 epilepsy is an incredibly rare form of epilepsy that causes seizures, behavioral problems and (typically) sensory and cognitive delays. Its name is derived from the source ...

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Topics: Epilepsy, Rare Epilepsy Disorders, Epilepsy in Infants & Children

Rasmussen’s Syndrome in Children

Rasmussen’s syndrome is surrounded by mystery and is a rare form of epilepsy that has features of an autoimmune disorder where immune system cells fight against brain cell ...

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Topics: Hemiplegia, Rare Epilepsy Disorders, Hemiparesis, Hemispherectomy

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